Monday, November 1, 2010

Some drama....

Well today was a weird day. I had my 18 month checkup and it went ok. While my counts remain stable, my genetic testing is not where he would like it at this point. So, we have decided to stop Gleevec and go onto a new, better medication called Sprycel. From all the reading, this is superior to Gleevec in many ways and will likely become the primary treatment for many patients soon. I am a bit apprehensive since I am now one step closer to the dreaded Bone Marrow Transplant, but still a long ways off. Chrissy did not handle the news well at first. Since I have read up on all these medications, I was aware that the new medication can cause a cardiac condition known as Long QT syndrome. When I brought that up to the doctor, she became upset. They ran an EKG to make sure I am not at risk, and I will start sometime this week!

6 comments:

  1. Well, you didn't really fail Gleevec, so I wouldn't consider a change in therapy one step closer to BM transplant.

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  2. I stumbled across your blog on Facebook and it is absolutely amazing. My 17 year old son was dignosed with CML in May 2010 and although his care at Cincinnati Children's is phenemonal and he is doing wonderfully on Gleevec, it is impossible to find any kind of support system because CML is so rare in teens and young adults like yourself. We will follow your blog and wish you continued good health on the Sprycel.

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  3. I just found your blog. As a fellow cancer survivor, my thoughts and prayers are with you.
    Also...Great Blog! You are a credit to the cancer blogging community. I have added you to my blogroll, “Cancer Blogs Lists” with over 1100 other personal cancer blogs at www.beingcancer.net, a cancer networking site featuring a cancer book club, guest blogs, cancer resources, reviews and more.
    If you have not visited before or recently, please stop by. If you agree that the site is a worthwhile resource for those affected by cancer, please consider adding Being Cancer Network to your own blogroll.
    Now that you are listed, you can expect to gain a wider audience for your thoughts and experiences. Being Cancer Network is a place to share and communicate.

    Take care, Dennis (beingcancer@att.net)

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  4. That is the right approach to medication which most of us forget.The treatment as decided by the doctor has to show improvements on you ...if not then you must learn to take another route soon enough.

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